Recently I got some news that was not so great about new complications with my FAP condition, that has challenged my positivity and made me once again come face-to-face with the devastating and unfair disease that FAP is. Continue reading
Tag: polyps
Usually my view from hospital is a car park ✨🌿 #nocolonstillrollin #dehydration #chronicillness #familialadenomatouspolyposis
Problems when you have short hair and too much of it 🙃🙃#chemohair #chemo #shorthairdontcare
Love working and lunching with @vicff4129 #blueskies #positivevibes
Last week was #never2young awareness week, and just through seeing all the stories people shared I realise how lucky I am that my polyps were discovered in time, how lucky I am that I’m not facing a terminal diagnosis that many others have. I have a rare genetic condition that predisposes me to lots of different cancers on top of bowel, but getting my diagnosis in time means I now get the monitoring I need before it’s a problem. But as young people we shouldn’t have to rely on luck when it comes to our health, getting a diagnosis and ultimately our lives. Years down the track I still feel a lot of anger towards how long it took to be listened to, because as I connect with more people on social media I am becoming more aware of what other people have gone through and I know that was so so close to being my story. Really thankful for the work @bowelcanceraustralia does to raise awareness.
Tags
ampulla
breakup
cancer
Chemo
chronic illness
Desmoid tumour
empowered
Familial adenomatous polyposis
family
FAP
hair
hair growth
Hair loss
Ileostomy
invisible illness
J-Pouch
nurses
oncology
pixie cut
polyps
Proctocolectomy
Rare Disease
Rare Disease Day
relationship
Relationships
scars
surgery
travel
Wig
work
young patient
