It’s a topic I’ve been avoiding writing about, but a pretty significant part of my story and where I am today. I was in the middle of chemo and about to start a new experimental treatment when my boyfriend of 6 years broke up with me at the start of the year.
Tag: relationship
Easter weekend feels 😴
Living life on the edge✨✨
A shout out to my rectum, who probably doesn’t look as cute as this plush toy from @iheartguts, but is the reason I can have the most normal life in my situation. In short, my makeshift bowel, known as a #jpouch, connects to the small remaining bit of my rectum, allowing me to go to the bathroom as I used to before surgery. I am more aware that I can’t take this for granted, because I’ve already had to have surgery this year to remove polyps that have grown back....and there’s only so much this guy can take before having to be removed completely. Here’s to hoping that’s far down the track. #loveyourguts #familialadenomatouspolyposis #nocolonstillrollin
A great little drawing book my mum got me, all sorts of themes of things around me in my daily life - feat. breakfast 🤣#inthemoment #mindfullness #bepresent
Tags
ampulla
breakup
cancer
Chemo
chronic illness
Desmoid tumour
empowered
Familial adenomatous polyposis
family
FAP
hair
hair growth
Hair loss
Ileostomy
invisible illness
J-Pouch
jpouch
nurses
oncology
pixie cut
polyps
Proctocolectomy
Rare Disease
Rare Disease Day
relationship
Relationships
scars
surgery
travel
Wig
work
young patient
