It may seem strange to dedicate a year to my hair, but it was both the lowlight and highlight of the year for me, and where I am with my hair now leaves me feeling really happy going into 2018. For the first time since losing my hair at the end of 2016, I can finally imagine myself having long hair again at some stage.
Sista sista 🤷🏻♀️ Friday nights watching dad sing 🎵
NEW blog: reflecting on my rare disease journey. I first started my blog to be another voice in the often isolating #raredisease journey. Deciding to be open about my experience was the best thing I could have done for my own sake as well. Link in bio. #familialadenomatouspolyposis #desmoidtumor #chronicillness #raredisease #shrinkingthesilence #showyourrare #untealwefindacure #desmoidian
July hair: feeling more and more like myself again 😀 didn’t realise until now that headbands could help with the short bits that still do their own thing, #akwardhairstage problems. #chemohairgrowth #chemohair #chemorecovery #almostbob
So many things to think about after seeing @bymariandrew tonight. My life so far has definitely not been the straightforward road map, but I’ve grown a lot through the trauma and uncertainty that’s been thrown at me through my illness and the things that have thrown me off path have also had positive impacts on how I value what’s important in life 💜
ampulla breakup cancer Chemo chronic illness Desmoid tumour empowered Familial adenomatous polyposis family FAP hair hair growth Hair loss Ileostomy invisible illness J-Pouch nurses oncology pixie cut polyps Proctocolectomy Rare Disease Rare Disease Day relationship Relationships scars surgery travel Wig work young patient