Today is International Nurses Day, and as a patient I I couldn’t be more thankful for the kindness and expertise I’ve been shown in my care by nurses. Through my eye surgeries, my bowel surgeries, the day procedures I’ve had done, my few trips to emergency and currently at the cancer clinic, I’ve always felt like I’ve been in great care. Continue reading
Usually my view from hospital is a car park ✨🌿 #nocolonstillrollin #dehydration #chronicillness #familialadenomatouspolyposis
Problems when you have short hair and too much of it 🙃🙃#chemohair #chemo #shorthairdontcare
Love working and lunching with @vicff4129 #blueskies #positivevibes
Last week was #never2young awareness week, and just through seeing all the stories people shared I realise how lucky I am that my polyps were discovered in time, how lucky I am that I’m not facing a terminal diagnosis that many others have. I have a rare genetic condition that predisposes me to lots of different cancers on top of bowel, but getting my diagnosis in time means I now get the monitoring I need before it’s a problem. But as young people we shouldn’t have to rely on luck when it comes to our health, getting a diagnosis and ultimately our lives. Years down the track I still feel a lot of anger towards how long it took to be listened to, because as I connect with more people on social media I am becoming more aware of what other people have gone through and I know that was so so close to being my story. Really thankful for the work @bowelcanceraustralia does to raise awareness.
Tags
ampulla
breakup
cancer
Chemo
chronic illness
Desmoid tumour
empowered
Familial adenomatous polyposis
family
FAP
hair
hair growth
Hair loss
Ileostomy
invisible illness
J-Pouch
nurses
oncology
pixie cut
polyps
Proctocolectomy
Rare Disease
Rare Disease Day
relationship
Relationships
scars
surgery
travel
Wig
work
young patient
