Remember that the body is an amazing thing, it can adjust over time and learn how to work in a way it was never supposed to. I’m seeing those results now that I’m three years out of surgery and you, hopefully, will too.
New blog on some awesome news I got this week - I can start having treatment every three weeks (I’ve been doing it fortnightly for over 2 years). Still, being such a rare tumour I’m a long way off knowing what the future holds and if I’ll ever be treatment free. Link in bio #noenddate #chronicillness #desmoidtumor #raredisease #rarediseaselife
As of today I’ve done what I set out to do for The March Charge for Cancer Council - walk 200KMs and in doing so fundraise towards a great cause that does so much for people affected by cancer. Still got a bit of time to do even more KMs and see more pretty scenery like I have so far. Pretty amazing what even a tired, chronically ill body like mine can do ✨✨ #themarchcharge2019 #cancercouncilnsw #urbanwalks #selfcare #chronicillness
A moment that hasn’t happened in over 2 years - no hair tied back, no bobby pins, and hair looking fine! That’s my March hair for you ✨🕺🏼#chemo #chemohairgrowth #desmoidtumor #nocrazyhair
After the storm comes the 🌈
ampulla breakup cancer Chemo chronic illness Desmoid tumour empowered Familial adenomatous polyposis family FAP hair hair growth Hair loss Ileostomy invisible illness J-Pouch jpouch nurses oncology pixie cut polyps Proctocolectomy Rare Disease Rare Disease Day relationship Relationships scars surgery travel Wig work young patient