Remember that the body is an amazing thing, it can adjust over time and learn how to work in a way it was never supposed to. I’m seeing those results now that I’m three years out of surgery and you, hopefully, will too.
November hair: still in the never ending in between, where my hair all out looks like a square mess 😂 thankfully there’s half up half down and bobby pins to have my hair all tied up like today 🌟 #postchemohair #chemo #morelikeme #almostbob
Channeling my inner rainbow to cope with the frustrations of chronic illness and the lack of control 🤦🏻♀️ Today’s example: I was due to have a 6 month follow up ERCP procedure done since a nasty ampulla polyp was removed last year. The gastroenterologist I see is the head of department and the one that needs to deal with complex emergencies which I completely understand. The problem is for the last few times I’ve been cancelled the day before, to the point where today I was just waiting for the call all day and getting anxious about it - and then as predicted I get a call at 3pm to reschedule. When I really think about it I feel silly for getting upset and frustrated. Work is super understanding with my need for time off and changing my dates around last minute and a week later really makes no difference even if they do find anything suspicious. I know that I’m frustrated because chronic illness has taken so much from me and made me work my life around things like this procedure, and without realising I’ve been nervous about having my follow up and preparing myself. So when it goes out of my control it really does feel like the end of the world. #chronicillness #familialadenomatouspolyposis #desmoidtumor #chronicallyill #nocolonstillrollin #medicalrants
What a place to call home ☀️
New blog about my #jpouch experience three years down the track and the small win of being able to handle chilli a bit better again 🌶 😍 link in bio #jpouchlife #nocolonstillrollin #familialadenomatouspolyposis #chronicillness
ampulla breakup cancer Chemo chronic illness Desmoid tumour empowered Familial adenomatous polyposis family FAP hair hair growth Hair loss Ileostomy invisible illness J-Pouch jpouch nurses oncology pixie cut polyps Proctocolectomy Rare Disease Rare Disease Day relationship Relationships scars surgery travel Wig work young patient