Remember that the body is an amazing thing, it can adjust over time and learn how to work in a way it was never supposed to. I’m seeing those results now that I’m three years out of surgery and you, hopefully, will too.
11/9/2015... 4 years ago, yet I remember it like it was yesterday. Getting to hospital at 6am with the most butterflies I’ve ever had in my stomach... knowing that I was going in for the biggest surgery of my life. A lot has happened in 4 years since the first few photos. I’ve had a stoma, had it reversed and learnt my new normal with a j pouch... I’ve had a desmoid tumour grow aggressively and cause multiple small bowel blockages, but then seen the tumour stabalise and shrink... I’ve lost relationships, but maintained and gained so many more... I’ve moved jobs... But most importantly, I’ve lived the best I can and shared my story. I’ve stopped taking life for granted because ever since I was diagnosed with Familial Adenomatous Polyposis it’s never been a certainty. #familialadenomatouspolyposis #bowelcancer #never2young #colorectalsurgery #nocolonstillrollin #desmoidtumor #jpouchlife #jpouch
Me and my wombat friends. Animals really are the best therapy 💕✨ #chronicillness #weekendrecharge
Love working for @cancercouncilnsw - particularly getting out and about for #daffodilday 🙌
Cancer and chronic illness is an emotional journey. I was back at the cancer clinic for the first time since my oncologist left.. and had a great first appointment with the new oncologist. Before I knew it, out of nowhere I was tearing up. Clearly not over the “break up” just yet and being in the same consulting room probably was what set me off! #doctorpatientrelationship #desmoidtumor #familialadenomatouspolyposis #chronicillness
ampulla breakup cancer Chemo chronic illness Desmoid tumour empowered Familial adenomatous polyposis family FAP hair hair growth Hair loss Ileostomy invisible illness J-Pouch jpouch nurses oncology pixie cut polyps Proctocolectomy Rare Disease Rare Disease Day relationship Relationships scars surgery travel Wig work young patient