Remember that the body is an amazing thing, it can adjust over time and learn how to work in a way it was never supposed to. I’m seeing those results now that I’m three years out of surgery and you, hopefully, will too.
The ureteric stents are back in place but my left kidney didn’t like being dealt with so I now call it Kidney Kardashian for sass levels. Hoping my body accepts the stents this time and doesn’t give me a million UTIs 🤞🏻#desmoidtumor #uretericstent #kidneyproblems #familialadenomatouspolyposis
Alongside Mother’s Day, today is also International Nurses Day. As someone who has regular IV treatments, I know the nurses at my cancer clinic very well and can’t thank them enough for their diligence, compassion and empathy each and every treatment (and there’s been many over the last 3 years.) Keep doing what do you, my chronically ill self is always grateful!! #internationalnursesday #chronicillness
The face of having a cough for over 3 weeks and a kidney that isn’t functioning properly - the joys and mixed bag of living with and being treated for a desmoid tumour. The cough isn’t related to the tumour but adds the extra element of 🥴 I had a good run without ureteric stents but they are making a comeback next week - at least my kidneys will be protected, but a frustrating step backwards #desmoidtumor #uretericstent #raredisease #familialadenomatouspolyposis
I declare this my final #postchemohair update. It’s now been about 2 and a half years since the extreme trauma of losing my hair - and I finally feel like as of April 2019, my hair is fully back 🥳🥳 #chemo #lifeafterchemo #fcancer #desmoidtumor
ampulla breakup cancer Chemo chronic illness Desmoid tumour empowered Familial adenomatous polyposis family FAP hair hair growth Hair loss Ileostomy invisible illness J-Pouch jpouch nurses oncology pixie cut polyps Proctocolectomy Rare Disease Rare Disease Day relationship Relationships scars surgery travel Wig work young patient