Recently I got some news that was not so great about new complications with my FAP condition, that has challenged my positivity and made me once again come face-to-face with the devastating and unfair disease that FAP is. Continue reading
Tag: ampulla
Tonight’s stormy sky is an accurate representation of life with #chronicillness and #familialadenomatouspolyposis. It’s all about finding the glimpses of light and the good in life at times when it should be impossible. Somehow I seem to see the good more often since getting sick #randomskyanalogies #selfcare #chronicallyliving
February hair: excited about a good hair day and how much my hair has grown these last few months #postchemohair #chemo #desmoidtumor
Holidaying with some of my oldest friends this week and you could hardly tell I had surgery 2 weeks ago to remove polyps. Laughter, sun and beautiful turquoise water is the best recovery 👊 #familialadenomatouspolyposis #nocolonstillrollin #invisibleillness #selfcare
Back into it for 2019 on my no name drug! Over a month off treatment has done me amazingly mentally, I have hopes that this year if my tumour stays stable and shrinking that I can phase off treatment and see what happens. We will see... 🤞🏻#chemo #desmoidtumor #raredisease #drugtrial
Tags
ampulla
breakup
cancer
Chemo
chronic illness
Desmoid tumour
empowered
Familial adenomatous polyposis
family
FAP
hair
hair growth
Hair loss
Ileostomy
invisible illness
J-Pouch
jpouch
nurses
oncology
pixie cut
polyps
Proctocolectomy
Rare Disease
Rare Disease Day
relationship
Relationships
scars
surgery
travel
Wig
work
young patient
