Recently I got some news that was not so great about new complications with my FAP condition, that has challenged my positivity and made me once again come face-to-face with the devastating and unfair disease that FAP is. Continue reading
Tag: ampulla
And just like that I’m having my last treatment for 2019! It’s also my last medical appointment for the year ✅ Looking forward to having a break for a few weeks and hoping for a relatively health drama-free 2020! ✨✨🙌 #chemo #familialadenomatouspolyposis #desmoidtumor #chronicillness
Weekend getaway 🙌✨🙌
At the start of 2014 I was enjoying a holiday in South Korea, no idea of the enormity of what was coming my way at the end of 2014. Here I am five years later, still making sense of it all and getting over my diagnosis experience - so I wrote a blog about it 🤷🏻♀️ Link is in my bio #never2young #bowelcancer #familialadenomatouspolyposis #patientempowerment
Me on the left is in March 2017... this photo was the first time I’d gone out in public without my wig on, and from that day on I said goodbye to the wig once and for all. It was incredibly challenging, I hadn’t told many people at work about being on chemo so I just built a story that I had felt like a change and cut my hair short. Behind the story was someone who had lost their identity and not feeling nearly as bold as I was making myself out to be. ✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨✨Photo on the right is me recently. It’s still not fully sunk in that I’ve come out the other side of an experience that was more traumatic than I could have imagined #chemotherapy #chemohairgrowth #desmoidtumor
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