I’m a 30 year old living with familial adenomatous polyposis (FAP) and a desmoid tumour.


Here are a few of the topics I write about:


I’m 2 years on from my big surgery where I lived temporarily with a stoma and accepting my new body, scars and all.


Reflecting on my support systems and the professional care I get, and what that means when you are chronically ill.


Updates on how my hair is growing back after chemo and learning to like my new identity.

Desmoid tumours

My experience on trial drugs, navigating the unknown and learning to be an oncology patient.  

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