I’ve had about 8 eye operations, 2 bowel surgeries and 2 chemo treatments, but the most traumatic experience so far has been losing my hair as a result of chemo to treat my desmoid tumour. Continue reading
Easter weekend feels 😴
Living life on the edge✨✨
A shout out to my rectum, who probably doesn’t look as cute as this plush toy from @iheartguts, but is the reason I can have the most normal life in my situation. In short, my makeshift bowel, known as a #jpouch, connects to the small remaining bit of my rectum, allowing me to go to the bathroom as I used to before surgery. I am more aware that I can’t take this for granted, because I’ve already had to have surgery this year to remove polyps that have grown back....and there’s only so much this guy can take before having to be removed completely. Here’s to hoping that’s far down the track. #loveyourguts #familialadenomatouspolyposis #nocolonstillrollin
A great little drawing book my mum got me, all sorts of themes of things around me in my daily life - feat. breakfast 🤣#inthemoment #mindfullness #bepresent
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cancer
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chronic illness
Desmoid tumour
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Familial adenomatous polyposis
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Ileostomy
invisible illness
J-Pouch
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Proctocolectomy
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