Those words have stuck with me for 5 years since I came in to see you, looking for an answer to my long list of ongoing symptoms, many terrifying and embarrassing to say out loud. Continue reading
Usually my view from hospital is a car park ✨🌿 #nocolonstillrollin #dehydration #chronicillness #familialadenomatouspolyposis
Problems when you have short hair and too much of it 🙃🙃#chemohair #chemo #shorthairdontcare
Love working and lunching with @vicff4129 #blueskies #positivevibes
Last week was #never2young awareness week, and just through seeing all the stories people shared I realise how lucky I am that my polyps were discovered in time, how lucky I am that I’m not facing a terminal diagnosis that many others have. I have a rare genetic condition that predisposes me to lots of different cancers on top of bowel, but getting my diagnosis in time means I now get the monitoring I need before it’s a problem. But as young people we shouldn’t have to rely on luck when it comes to our health, getting a diagnosis and ultimately our lives. Years down the track I still feel a lot of anger towards how long it took to be listened to, because as I connect with more people on social media I am becoming more aware of what other people have gone through and I know that was so so close to being my story. Really thankful for the work @bowelcanceraustralia does to raise awareness.
ampulla breakup cancer Chemo chronic illness Desmoid tumour empowered Familial adenomatous polyposis family FAP hair hair growth Hair loss Ileostomy invisible illness J-Pouch nurses oncology pixie cut polyps Proctocolectomy Rare Disease Rare Disease Day relationship Relationships scars surgery travel Wig work young patient