After two years of active treatment for my aggressive desmoid tumour, I finally feel like things are back on track and that there’s more going for me than just hope, I have consistent scan results that show shrinkage each time. The tumour hasn’t grown since the end of 2016 and things are looking promising that it will stay that way for the near future at least.
I recently saw a fundraising page for someone shaving their hair for charity. What stood out to me was the campaign logo which said “be brave & shave”. Don’t get me wrong, I’m all for campaigns like this that get people involved and raise money for an important cause, the problem I have is with the language used and assumptions it makes about what it’s like to lose your hair to chemo.
I’ve written before about how much I struggled with my hair falling out and as it continues to grow out I still to this day think of it as my biggest challenge to get through so far. Bravery is part of my experience but not in the way it’s sometimes depicted in fundraising campaigns.
I’m really happy with how my hair is growing out. A month or so ago I sacrificed some length, to give my hair some shape – and now I can really see the difference it makes. My fringe is long enough now to do some fun twists and braids, and when my hair is straight it forms a really nice pixie 🙂