The last couple of months have been hard for me. I think last year I was in the groove of things, I had recovered really well from my bowel surgeries and even when I got the news that my desmoid tumour had come back, I was feeling positive and treatment didn’t seem to daunting. It soon started growing really aggressively and for a few months it was pretty scary and I did wonder if it would ever stop growing. Continue reading
Tag: Rare Disease
Those words have stuck with me for 5 years since I came in to see you, looking for an answer to my long list of ongoing symptoms, many terrifying and embarrassing to say out loud. Continue reading
I’ve been thinking about starting a blog for a while, but have always been shy to put myself out there online. Since finding out about all these fun rare diseases, I’ve had a lot of thoughts – good, bad, random – go through my head and I always find that writing it down really helps. Continue reading