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Shrinking the Silence

Sharing a voice on living with rare disease

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Happiness = new pjs, colourful nails, book and sunshine ☀️🌈 #chronicillness #selfcare #invisibleillness
I work at a cancer charity and today we had a competition to dress up our area of the office in yellow in the lead up to our big fundraiser. Lots of homemade daffodils of hope featured, I love the meaning it brings and know from my experience how important hope is in Illness #hope #cancerfreefuture #desmoidtumor #cancer #familialadenomatouspolyposis
August hair: give or take a few uneven patches, I’m back to the bob I had before the chemo ordeal began in August 2016! Couldn’t be happier 😍🎉👧🏻 #chemohairgrowth #desmoidtumor #postchemohair
A weekend of sunshine, good friends and beautiful nature was just what my body needed 🍍🌴☀️🌈😍

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ampulla breakup cancer Chemo chronic illness Desmoid tumour empowered Familial adenomatous polyposis family FAP hair hair growth Hair loss Ileostomy invisible illness J-Pouch nurses oncology pixie cut polyps Proctocolectomy Rare Disease Rare Disease Day relationship Relationships scars surgery travel Wig work young patient

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