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Shrinking the Silence

Sharing a voice on living with rare disease

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ampulla breakup cancer Chemo chronic illness Desmoid tumour diagnosis empowered Familial adenomatous polyposis family FAP hair hair growth Hair loss Ileostomy invisible illness J-Pouch jpouch nurses oncology pixie cut polyps Proctocolectomy Rare Disease Rare Disease Day relationship Relationships scars surgery travel Wig work young patient

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