I’m a 28 year old living with familial adenomatous polyposis and a desmoid tumour.

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Here are a few of the topics I write about:

Surgery

I’m 2 years on from my big surgery where I lived temporarily with a stoma and accepting my new body, scars and all.

Relationships

Reflecting on my support systemsย and the professional care I get, and what that means when you are chronically ill.

Hair

Updates on how my hair is growing back after chemo and learning to like my new identity.

Desmoid tumours

My experience on trial drugs, navigating the unknown and learning to be an oncology patient.  

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