Shrinking the Silence

Sharing a voice on living with rare disease

Starting a treatment with no name — March 27, 2017
The overwhelming experience of losing my hair — March 19, 2017
The four things that keep me going — March 15, 2017

The four things that keep me going

The last couple of months have been hard for me. I think last year I was in the groove of things, I had recovered really well from my bowel surgeries and even when I got the news that my desmoid tumour had come back, I was feeling positive and treatment didn’t seem to daunting. It soon started growing really aggressively and for a few months it was pretty scary and I did wonder if it would ever stop growing. Continue reading

You’re making poor choices for a 22 year old — March 10, 2017
Inspiration for this blog —